Dedicated to raising awareness of ALL tick borne diseases, offering support, and providing referrals for information, research, and healthcare choices.

I made it back from the Philadelphia protest in one piece. It was a great experience, as usual, meeting many new faces from across the country. NY, CT, VA, WV, WA, OR, FL, KS, NV to name a few, were all participants. We had a candlelight vigil for those who have died from Lyme the past year or so.

The IDSA was NOT accommodating toward us (not surprised). Just to make it clear, The Mayday Project is not protesting for long-term antibiotics.

What we want is for them to revise the guidelines and accept persistent Lyme disease as a diagnoses. This will open the door for people to do research into the chronic form of the disease and hopefully produce a cure. This is what we ultimately want, not the use of long term antibiotics. While that might help some, that’s not our demand. It’s a complete revision of the Lyme disease guidelines to accept and acknowledge chronic Lyme. Their only response to us has been “long term antibiotics are dangerous” and references to an outdated John Hopkins University study that showed “Chronic Lyme disease” doesn’t exist. Same old thing they have been spouting for years.

I will add a link to the video of the protest so you can see what it is all about.
In the meantime, back to local issues. Let’s talk about the Arklatex.

Since there are many of you who feel that physically protesting is not the way to gain acceptance of Lyme in our area, let’s go for another strategy. Then maybe the protests can come later.

First, lets’s figure out a plan.

DEFINE THE PROBLEM IN THE ARKLATEX.

A). GOALS:
TO GAIN ACCEPTANCE AND RECOGNITION THAT LYME IS IN THE AREA?.
WHAT ELSE?
WHAT ELSE?.
B). OBJECTIVES: HOW WE WILL REACH THESE GOALS?
WHAT DO YOU FEEL IS THE BEST WAY TO REACH OUR GOAL/
OBSERVATIONS, INPUT?

This will be a start. Like I said last week, think about this. I need input and suggestions. Let’s lay it out how we can deal with the Arklatex first. But we need to stick with the “treatment plan”. Help us fill in the blanks! We are in this together, we want change, but it won’t happen until we get in action.

I’ll plan for a conference call in about 10 days or so. Then we’ll discuss our strategy. Thank you all for your interest and posts this last month!!!!!

Link to video of the Mayday Protest in Philly, Oct. 11.
Lyme Disease Protest – Philadelphia, PA – 10/11/14

Lyme Disease Protest – Philadelphia, PA – 10/11/14
On October 11, 2014 a protest was held to encourage the IDSA (Infectious Diseases Society of America) to change their outdated and ineffective guidelines for…
Lyme Protest

I’ll be posting to the Arkansas Lyme Facebook Page as well. Arkansas Lyme Disease
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Arkansas Lyme Disease
Arkansas Lyme Disease seeks to connect those who have contracted Lyme and tick-borne diseases and…

diein

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