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Archive for January, 2016

LYME COMMUNITY CALL TO ACTION! Jan. 26-27, 2016. Or any day!


On January 26 – 27, Lyme patients and their friends, families, medical providers, advocates, and supporters from coast to coast will be placing phone calls, posting Facebook posts, and Tweeting messages to their Congressional representatives. The messages, which we’ll send to you in the next few days, call upon the government for a redress of grievances, a right afforded to all of us by the First Amendment.

You are not imposing or inconveniencing your representatives. It’s part of their job to serve their constituents, which include all U.S. citizens in their state or district. It is also our duty, as concerned citizens, to speak out together and call on Congress for help.

Our call for action will be based upon the failures of the Centers for Disease Control and Prevention in the handling of public policy pertaining to Lyme disease, including, but not limited to: their preferential treatment of the Infectious Diseases Society of America, a private professional organization; their failure to provide medical providers and patients with ALL the available information pertaining to diagnosis and treatment by only endorsing the IDSA Guidelines; extensive under-reporting of the disease and misrepresenting the status of the disease; permitting a matrix of conflicts of interest and inappropriate conduct to exist in this government agency, among other concerns.

If you are on Facebook, you can track the progress of this national operation at this page:

You might think that your one voice doesn’t matter — but you’d be wrong! EVERY voice helps to increase the volume. We desperately need to be heard, and we need your voice — and the voices of your friends and family on Jan. 26-27 when we launch this national initiative.