Dedicated to raising awareness of ALL tick borne diseases, offering support, and providing referrals for information, research, and healthcare choices.

Kris Newby, author of Bitten, walks through the origins of Lyme disease and other tick-borne illnesses, stemming from federal programs to employ them as biological weapons abroad, with Governor Jesse Ventura.

Dorothy Leland avatarCredit: Dorothy Kupcha Leland.

Some background:

The Working Group was created by the 21st Century Cures Act, which included many different health-related provisions. The TBDWG was inserted into it at the behest of Lyme patient advocates.

The idea was to give Lyme patients, their treating doctors, and researchers toiling on their behalf a voice in the formation of government policy regarding Lyme disease.

SEE ARTICLE IN IT’S ENTIRETY AT LYMEDISEASE.ORG

Insurers Accused of Conspiring to Deny Lyme Disease Coverage

Twenty-eight people claim in a federal antitrust lawsuit that Lyme disease victims are being forced to pay hundreds of thousands of dollars for treatment because health insurers are denying coverage with bogus guidelines established by their paid consultants, who falsely say the disease can always be cured with a month of antibiotics.

 

See the article in it’s entirety here: https://www.courthousenews.com/insurers-accused-conspiring-deny-lyme-disease-coverage/?fbclid=IwAR0QemEnSZ8d_rBeNGfa1YMQJxJR0lBSkkTBT04PKAcBkvZfhx0aFxpmBLQ

 

25
FEB
2019

Patient lawsuit against IDSA and insurers moves forward in Texas

By Mary Beth Pfeiffer

A federal lawsuit that may just validate the pain of thousands of Lyme disease patients – and the flaws in prevailing tests and treatments — is moving ahead in a Texas courthouse, despite attempts to kill it.

The lawsuit’s progress is a big development in the decades-old struggle of patients whose post-treatment conditions – involving myriad neurological, cognitive, musculoskeletal, and cardiac symptoms — have long been misdiagnosed and minimized. Patients have hence had to seek out-of-pocket treatment from physicians who risk their licenses providing it.

The suit, Torrey v. Infectious Diseases Society of America et al, aims to change that, and, make no mistake, is a serious challenge to the Lyme status quo (see my article from 2017).

In the crosshairs of the case are six major architects and proponents of the guidelinesthat have dogmatically ruled Lyme disease care for two decades: Raymond J. Dattwyler, John J. Halperin, Eugene Shapiro, Leonard Sigal, Allen Steere, and Gary P. Wormser. (A seventh, Robert Nadelman, died in 2018.)

Beyond that A-list of Lyme actors, the lawsuit also accuses eight insurers of conspiring with the IDSA and the Lyme architects to advance treatment protocols that limited care options to the 25 named plaintiffs, two deceased, for whom the protocols did not work.

The companies are Blue Cross And Blue Shield Association, Anthem, Inc., Blue Cross And Blue Shield Of Texas, Aetna Inc., Cigna Corporation, Kaiser Permanente, Inc., United Healthcare Services, Inc., and Unitedhealth Group Incorporated.

See article in it’s entirety here:

https://www.lymedisease.org/idsa-lawsuit-pfeiffer/?fbclid=IwAR02oK1Kczy7L07HJX0DQJ7-lkpLizwnkbMZJmnZhQmfHahdIH9LcgXLA1w

From The Lyme Army and Lymedisease.org:

This is why our disease is being denied & we can’t get any help!! We can’t sit back and do nothing! Time to fight for our lives and the truth!! CNN Fox News Usdoj.gov time to investigate!!

From lymedisease.org:

“In 1994, at a meeting in Dearborn, Michigan, a group of laboratory scientists changed the serological definition of Lyme disease in concert with the development of a Lyme vaccine. The newblood test would make it easier to secure FDA approval for the vaccine, called LYMErix, those at the helm of product development said.”

Instead of documenting an expansion and intensification of “bands” representing antibodies to the disease on a Western blot, as before, the new, more restrictive test, called for detection of 5 of 10 bands. This was one pattern of many, according to the manufacturer, that could indicate true infection.

Among the other changes, the test would no longer consider, for purposes of diagnosis, the protein that formed the active ingredient in the vaccine –Outer Surface Protein (Osp) A. Without screening for OspA and its connected protein, OspB, a vaccinated person would test negative, clearing an easy path for FDA approval of the vaccine. However, this made it virtually impossible for many of the sickest patients to get diagnosed with Lyme, including those who would have tested positive under the previous standards.” More here: https://www.lymedisease.org/vaccine-chapter-of-cure-unknown/

Sign and share the petition to drain the CDC swamp: https://www.change.org/p/president-trump-and-congress-drain…

No automatic alt text available.

According to a study from Tulane University, the bacteria that causes Lyme Disease can survive beyond a 28 day course of antibiotics.  Please follow the link after the summary for the full story. Excerpts from the article below……………..

Story Source:  http://www.sciencedaily.com

male bugs illness disease

Photo by Pixabay on Pexels.com

Materials provided by Tulane University. Bay Area Lyme Foundation, a leading sponsor of Lyme disease research in the US, today announced results of two papers published in the peer-reviewed journals PLOS ONE and American Journal of Pathology, that seem to support claims of lingering symptoms reported by many patients who have already received antibiotic treatment for the disease.

Outline:

“Based on a single, extensive study of Lyme disease designed by Tulane University researchers, the study employed multiple methods to evaluate the presence of Borrelia burgdorferi spirochetes, the bacteria that cause Lyme disease, before and after antibiotic treatment in primates.”

“The data show that living B. burgdorferi spirochetes were found in ticks that fed upon the primates and in multiple organs after treatment with 28 days of oral doxycycline.”

“The findings also demonstrated:

  • All subjects treated with antibiotics were found to have some level of infection 7 — 12 months post treatment.
  • Despite testing negative by antibody tests for Lyme disease, two of 10 subjects were still infected with Lyme bacteria in heart and bladder.
  • Lyme bacteria which persist are still viable.”

READ THE ENTIRE ARTICLE IN IT’S ENTIRETY HERE:   SCIENCE DAILY

 

 

 

FROM THE PRODUCERS OF “THE MONSTER INSIDE ME”

“Hi everyone!! Tony & Frances here- we are the producers of The Monster Inside Me, Lyme documentary, along with Paul Cho (The Angriest Man in Brooklyn and Tallulah). Our dream and deepest desire is to finish this film (please watch our teaser and visit our website) and send it to the film festival circuit so that we have a chance to get the doc seen by tons of people. We also want to do private viewings around the country, wherever you are. That is our goal and dream.
This movie is being created BY Lyme Warriors FOR Lyme Warriors and their families and friends. The music is being composed by artists that suffer with Lyme, as is all the editing and production. This is OUR movie about what WE suffer with. It is about showing the world what Lyme is, unmasked, raw. Yet at the same time, it is unveiling what transformations this disease causes when the Warrior pushes through, doesn’t give up, seeks treatment and shares their story. We want your loved ones to understand you, to have an “aha” moment when watching the movie. But mostly, we want to give you hope, as we interview doctors and leading scientists about healing and living with Lyme.

We also point the camera at ourselves showing the world what Lyme does to a relationship, to your body, mind and soul! In this journey of 18 months now, we came across AMAZING people who shun light in our paths, helped us heal in more ways than one, and allowed us to see the purpose and beauty, dare we say it, of Lyme Disease. We want to share this with you…. in the art form of film.

The vast majority of the movie has been filmed. We need the last leg to do a few more trips – including an interview with a leading scientist and Lyme specialiset at the University of Connecticut, and Dr. Horowitz, in NY. Once we are done with that, post production comes to play, where long hours will be spent on color grading, correction, the film soundtrack, mixing, etc. This is the bulk of our costs, although very tight.

Please help by contributing and then asking a few people around you to do the same. Share the trailer, share the story. We appreciate it and love you guys!

CAMPAIGN — CLICK ON LINK AND DONATE!      https://www.gofundme.com/tmimfilm

CREDIT:  WWW.Lymeadvise.com  (see link below)

 in 

What is happening?

There is currently a form of a class-action lawsuit in development against the CDC and other entities causing personal injury to the public regarding the lack of use, suppression, and failure to promote a PCR (DNA sequencing) test, developed by Dr. Sin Hang Lee, which has been available since 2010 for early Lyme disease detection.

Please go to the following link and read the information in it’s entirety.  This is very important for many, many, people!

Story Here!

In a July 4th article, author Jenna Luche-Thayer describes how the CDC’s profile has plummeted while 15 other government authorities are acting on persistent and disabling Lyme Disease. She questions the motives of the CDC and the view they project concerning chronic Borreliosis.

This is a must read for anyone who doesn’t fully understand why the CDC isn’t treating this (persistent Lyme infection) as the epidemic it is.

Read the full story here:  CDC’s Profile Plummets…………..