12 JUN 2019 TOUCHED BY LYME: Working group’s abrupt shift excludes Lyme patients.
Credit: Dorothy Kupcha Leland.
Some background:
The Working Group was created by the 21st Century Cures Act, which included many different health-related provisions. The TBDWG was inserted into it at the behest of Lyme patient advocates.
The idea was to give Lyme patients, their treating doctors, and researchers toiling on their behalf a voice in the formation of government policy regarding Lyme disease.
SEE ARTICLE IN IT’S ENTIRETY AT LYMEDISEASE.ORG
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