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By The Arkansas Democrat-Gazette
This article was published today at 3:57 a.m.
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LITTLE ROCK — Disease’s reach wider
Buddy Gough’s feature on ticks was informative, but I believe
misleading on one point: that Lyme disease is “rare in Arkansas.”
According to the International Lyme and Associated Diseases Society,
Lyme is the fastest-growing infectious disease in the U.S. today,
affecting up to 300,000 Americans each year. It’s often misdiagnosed
as chronic fatigue, fibromyalgia, multiple sclerosis, dementia,
Alzheimer’s, ADHD or a host of other “chronic illnesses.”
I tested positive and was diagnosed with late-stage neurological Lyme
disease at three independent clinics in Texas, Arizona and Missouri
after eight years of misdiagnoses in Arkansas. Yet, according to the
Arkansas medical community’s protocols, I do not have Lyme.
Arkansas will have its first physician to be certified as a Lyme
Literate Doctor (LLMD) this year, and his motivation is personal as
well as professional. His wife, who has been chronically ill, tested
positive for Lyme last year, as did he and his six children. Once he
started doing research on Lyme, he re-evaluated more than 180 patients
at his clinic with various “chronic illnesses.” About 150 tested
positive for Lyme. So much for “rare.”
For objective and truthful information, I would recommend Coping with
Lyme Disease by Denise Lang and Kenneth Liegner, as well as the
websites underourskin.com and arklatexlyme.com.
“Rare” is definitely not an accurate portrayal of Lyme in Arkansas, in
my opinion. In fact, the opposite is more accurate and frightening.
LINDA SHARP
Little Rock
Comments on: "Arkansas Democrat Letter To Editor: Concern Over Lyme in Arkansas!" (13)
Is it possible to find out the name of the Arkansas LLMD referred to in this article? My nephew has had Lyme for many years and needs a specialist in this state to help him. Thank you. Jan Whitt
I desperately need to find this dr.
Jan, I sent you a personal message so that your nephew can get the help he needs. Tell your nephew that he is not alone in his struggle and their is help! Also, explore the ‘Important Links’ section of this site. It will lead you to more support forum sites who can encourage him and family. God bless you.
I also would like to know the name of the LLMD in Arkansas. I’ve been sick since I was first bitten and had the bull’s eye rash in 1983. I have been to so many doctors & have tried so many things to get well. Nothing has helped me. I was so grateful to read your letter. Thank you so much for your time and the information about the doctor!
First, we’d like to state again that the letter to the editor WAS NOT written by Arklatex Lyme staff. We appreciate the writer of the letter, Linda Sharp, for sharing our website information. We just wanted to make it known that we were not the authors of the letter.
Please share the name of the Lyme Disease specialist in AR. I have been diagnosed and need all the help I can get.
Linda,
I would be curious to know the name and contact info. Of this doctor. I have recently been diagnosed with Lyme disease after having a myriad of symptoms over the past 2 years. Thank you for your help.
-John
Please contact me, we are so extremely ill I cant even tell you, neuro and menegitis and no help complete numbness so much but its hard to write myself and two children cd 57 is 21, we are barely suviving. We need a lyme literate doc. Please email me.
Madison,
You need to go to this link:http://www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=598:about&catid=107:patient-support&Itemid=304
This is the LLMD referral system. Create a login there, and it will instruct you what to do. You will be able to type in the area code where you live & it will take you to the nearest doctor. Hang in there!
Please send me the name of the Lyme Doctor in Arkansas. I have been diagnosed with chronic Lyme and just found out that I passed it on to my son through the placenta. He is now 11 years old and also suffering. We have been to NY and TX but so expensive to keep traveling. Please help us!
My daughter and myself both have had Rocky Mountain fever and now Lyme as well. We live in Bald Knob,Ar. I wish I had know about this we could have been there all of us.
I found a real Lyme Doctor in Little Rock but he isn’t taking more patients he’s maxed out at 500 and 200 in his new clinic but praying somehow we can get on the list or get another one near soon. My daughter is getting worse. We have to get the truth about lyme being everywhere out there.
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